Sacramento Stockton Modesto, CA, August 6, 2026 —

Emma Heming Willis, wife of actor Bruce Willis, visited the California State Capitol in Sacramento recently to advocate for legislative action concerning frontotemporal dementia (FTD).

Her visit focused on supporting a bill that proposes to enhance the collection of data related to FTD. The aim of increased data collection is to further research and understanding of the neurodegenerative disease, which affects cognitive and behavioral functions.

Frontotemporal dementia is a group of disorders caused by progressive nerve cell loss in the brain’s frontal lobes (the areas behind the forehead) or the temporal lobes (the areas below the temples). The specific symptoms experienced depend on which part of the frontal or temporal lobes is affected.

Heming Willis has been a vocal advocate for FTD awareness since her husband, Bruce Willis, was diagnosed with the condition. The disease has progressed, impacting his ability to communicate and engage in daily activities.

The proposed bill seeks to establish a more robust framework for gathering information on FTD cases, which could potentially lead to improved diagnostic tools, treatment strategies, and support systems for patients and their families. The specifics of the bill and its current legislative status were not detailed.

Advocacy efforts like Heming Willis’s visit are crucial in bringing attention to rare diseases like FTD, which may not receive the same level of public or research funding as more common conditions. The visit to the state capitol highlights the importance of legislative bodies in addressing public health issues through policy and funding initiatives.



Story summarized from the original created by Eytan Wallace,Eric Schucht on fox40.com, see more information here.

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